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Patient support and advocacy groups can be a great place to look for community support, additional resources, and valuable information on sickle cell. Below is a list of patient support providers.
American Society of Hematology (ASH)
Advancing Sickle Cell Advocacy Project:
Martin Center for Sickle Cell Initiative:
Sickle Cell Disease Association of America (SCDAA):
Sickle Cell Warriors:
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November 2023.
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The information provided is for educational purposes only and is not intended to replace discussions with a healthcare provider.