After suffering a debilitating stroke and partial paralysis at age nine, Tristan used his creative expression as an outlet for dealing with the often painful attention of classmates. Today, as a fashion designer and advocate for sickle cell, Tristan is letting his art do the talking for him – all the way to New York Fashion Week.


“In becoming an advocate, I realized that this is my purpose. Spreading sickle cell awareness is really my life’s calling and why I’m actually here.”

— Tristan

It Takes A Village - The Power of Sickle Cell Community

At a young age, Tristan learned the importance of building a network that included family members, healthcare providers, local and national advocacy organizations, and others who provided information on sickle cell and support throughout his sickle cell journey.

Find Patient Support

Tristan’s Truth: Conquering SCD Misconceptions

Tristan learned the importance of early and proactive care at a young age and created a treatment plan to help manage his sickle cell. Understanding sickle cell enabled him to advocate for himself and overcome misconceptions. He lives by the words: I have sickle cell, sickle cell does not have me.

Overcoming Misconceptions