Sickle Cell Disease research has come along way in the last thirty years. I know doctors have invented treatment plans to help ease our pain. They treat us with blood transfusions that cause iron overload. One night I was laying in the hospital wondering how could I help us. Sickle Cell Disease patients discuss our care. A scd patient in Washington DC. may have a better treatment than someone in Dallas TX. I believe there is one other way we can make it better.
We can find other forms of treatment and care by working together. Let's share to be better aware and recieve better care. We need to speak up for our disease. Where are the Sickle Cell Disease commericals, teleathons, and spokespersons? We have to stand up and speak up for ourselves.
I know with this illness every case is different. It is a fact that some of us go through more challenges than others. Learning new and different treatments can help improve us. Then we can take the information back to our doctors and see if we can improve our lives.
I want this website to help us get information across the nation. Its not just about the treatments we can discuss our care and experiences. Where all sickle cell disease patients and family members can come together. If we help anyone then its worth it.
I know Sickle Cell Disease is not the only disease being left behind. There are other diseases and disorders without commericals, spoke persons, and media attention. Anyone with arthritics, bone or nerve pain, any disorders or diseases. Everyone who's familiar with pain and discomfort. The struggle can help us all come together. Let's discuss what is on our mind good or bad this is the place to let it go . SPEAK UP !!!